Saturday, November 10, 2012

Asperger's Syndrome in the news - Alex Ong; My experience with Asperger's Syndrome

I came across a news article in the Home section of the Straits Times two days ago about this boy named Alex Ong who is charged with causing voluntary causing hurt by pushing an old lady off the bus. You can read about it and watch the video clip of the incident that was secretly filmed by a passenger on the bus here. According to what I have read in a previous news article, he was apparently upset with the old lady for pressing the bell just as the bus was leaving a bus stop along Upper Thomson Road and wanted to teach her not to do that. But somehow, he didn't get his message through, and there was a heated exchange between the old lady and him before he snapped. When interviewed by the New Paper, he said that he had been diagnosed with clinical depression, and obsessive compulsive disorder and Asperger's syndrome since he was in primary school.

There is not much awareness of the condition of Asperger's Syndrome in Singapore. And I wonder how prevalent the condition is in Singapore. According to estimates in America, the data shows quite a figure of 1 in every 88 people, and I suppose the figures should be somewhere around the same in Singapore as well. I hope that the Alex Ong incident would not create the impression amongst the public that people with Asperger's Syndrome are dangerous. The features of Asperger's Syndrome are quite different in different individuals, and to different degrees as well. In the case of Alex Ong, Asperger's Syndrome affected him in a manner such that he finds it difficult to communicate his intentions clearly, and to rationalize what ticked him off as to trigger off his anger.

Part of the reason why there is a lack of awareness of Asperger's Syndrome is that there is no impetus to get a diagnosis. Most people would simply dismiss the symptoms of Asperger's Syndrome as being that of a personality defect. I would say that I have observed some individuals in my life who display characteristics of Asperger's Syndrome but who perhaps remain undiagnosed.

I remember watching a youtube video of Temple Grandin, a noted autistic who is an American doctor of animal science and professor at Colorado State University giving a talk at a TED conference.She said, half in jest, that the pool of IT professionals at Silicon Valley are all somewhere along the autism spectrum. I suppose the equivalent professional field in Singapore where such individuals might be is the engineering faculty or computer science faculty of the National University of Singapore? I say this with some circumspection lest it is not truly the case or it causes offence to anybody for any reason. Hey, there is one over at the law faculty!

I have read up on the internet of famous people with Asperger's Syndrome. There are quite a handful of famous people in history as well as in the present times who are suspected of having Asperger's Syndrome. Psychologists put Albert Einstein on the autistic spectrum for his childhood account which detailed his obsession and wonderment with the way the magnet in the compass always points in the same direction. The accounts of Bill Gates having a poor social life in his youth and even in his adulthood (name-calling levied perhaps by his opponents in the computer industry?), together with his aversion towards eye contact and exhibition of stimming behavior of rocking back and forth, have made him suspect for being on the autistic spectrum as well. Well, I suppose it doesn't feel too bad to be diagnosed with Asperger's Syndrome when you can call yourself in the same company of these great people, although I don't think I possess the same amount of intelligence as them, and I would be skeptical about presuming these people as truly being on the autistic spectrum. See my post here about the possible phenomenon of the overdiagnosis of Asperger's Syndrome. But do note that Asperger's Syndrome is not necessarily associated with high achievement. There are people with Asperger's Syndrome in different levels of strata of society, and quite a handful who are not doing very well.

I was diagnosed with the condition by a psychologist after a very difficult social experience during my high school days at St Joseph's Institution. I think that I am at more socially functionable now. My condition may be quite mild compared to the rather severe ones that I have seen, including the likes of Alex Ong. My friends have commented that they would not suspect that I would have such a condition. They just thought that I was the quieter type of person. I think that I have insight about what is socially appropriate, and am not totally oblivious to social norms.

But I have to say that my social experience is in my opinion, not fully normal. At least, when I see the sort of social interaction amongst my peers in day-to-day life, and the photos of their social life that they put up on their facebook account, I would have to say that my exclusion and lack of participation in such social activities is evidence of my social abnormality. I am just rather inhibited and aloof, and I would find myself feeling awkward if I have to participate in such social activities.

But I have come to be able to accept myself for who I am, and not be too self-conscious about my lack of conformity with social conventions. It is only recently that I have begun to 'come out' as someone with Asperger's Syndrome, after about 7 years of keeping it confidential. I suppose there is a sort of relief in being able to get people to understand my condition, and contrary to my worries of people thinking me weird and avoiding me, the people around me whom I have told about my having Asperger's Syndrome have been quite understanding and helpful.

But of those who do not know that I have such a condition, there are some who after having interacted with me conversationally or socially and formed their impression, behave in a rather chilly and unfriendly manner towards me thereafter, not wanting to acknowledge my presence when they pass by me in school, or are quite lukewarm in their manner of greeting me. There are some who would treat me quite meanly or with disrespect, such as a girl in my company law tutorial group, who in order to save word count from the group assignment, delete a substantial portion from the part of the tutorial question I was assigned to do without asking my permission and submitting the document for grading, which is to my detriment because the professor looking through the submission would think that I have left out on answering on those issues. I asked her about why she did what she did, and she offered a rather unconvincing explanation that I could present these materials during the presentation. I suppose I could probe further but that would be too confrontational for my liking. I suppose I smile, say I understand, and pretend that there is still mutual congeniality. But I think it is necessary for me to be shrewd about who she is as a person.

I suppose such social experience is not unfamiliar to me. It was much worse when I was in high school. But I have come to accept myself and not to be too self-critical about my difficulty in changing myself.

Well, I suppose I will do my part to raise awareness for Asperger's Syndrome, and I would certainly like to extend a helping hand to anyone in society who may be experiencing difficulties due to having such a condition.

20 comments:

Rachel said...

Hi Samuel,

I have a boy, 9 yrs old, with asperger and at this point of time I have not told him or the school. Given your experience in the past, do you feel it was better or worse for your school and friends to know? sorry I know this is a personal question but I have struggled with this for a while. Will appreciate your view on this. Thanks!

Rachel said...

Hi Samuel,

I have a boy, 9 yrs old, with asperger and at this point of time I have not told him or the school. Given your experience in the past, do you feel it was better or worse for your school and friends to know? sorry I know this is a personal question but I have struggled with this for a while. Will appreciate your view on this. Thanks!

Samuel Tee said...

Hi Rachel! For my own experience regarding disclosing about Asperger Syndrome, I actually think that it wasn't very useful in disclosing about such condition to my peers. People in real life around don't seem to care whether they know that I have Asperger Syndrome or not. Moreover, there isn't much awareness of the condition in Singapore, and in my own experience and observation of a friend I know who disclosed his Asperger's Syndrome, there can be a lack of sympathy for people even if they disclosed their condition to others. Some peers I know deny the existence of such a condition and attribute the symptoms of Asperger Syndrome to bad parenting!

I think disclosure of Asperger Syndrome would have made a more positive difference if there was greater awareness of what it is about in Singapore. This is not something that I observe from my peers and even adults I have worked with. But there may be circumstances where disclosing it may be necessary and helpful, such as to furnish reason to not serve in combat capacity for national service. I was designated to a more suitable administrative vocation in national service because of Asperger Syndrome.


Anonymous said...

i guess labelling self as Asperger is worse than being just different to others, for others do not have the knowledge on how to interact with an Asperger.

Anonymous said...

Hi Samuel,

I am at a crossroad and I felt very enouraged by you (both your courage and your forsight) in raising awareness in Asperger. I have received feedback recently from my 3 yr old childcare, that, her teacher suspected that she has AS.

Do you think I have a chance to speak to you personally? Do contact me notrough at hotmail . Hope to hear from you soon.

Anonymous said...

Hi Samuel,
I have a 12 year old with Asperger.
My child is not doing well socially in school.
I worry for him because secondary school starts in one month; National Service in the future. How is he going to cope?
Do you think therapy might help?
Please share with me your own journey on Asperger.
Honestly, I am very concerned with his social issues when I stumbled upon your Blog.
Thank God for leading me to your blog.
If it is possible, I would like to be in touch with you for purpose of seeking your advise on this topic and how I could help my son. Any way I can contact you?
Thank you. Blessing, Kris.

Samuel Tee said...

Sorry for the late reply Kris. I suppose some opinions I would give on your question is that it would be helpful for some intervention on the part of parents or teachers should your child encounter bullying or is socially alienated. For me, I appreciate my teacher helping me form a small circle of friends from the classmates I had. As for national service, I was exempted from combat training by informing the army doctors of my Asperger Syndrome.

You can contact me on my email at samuel_tee_we@hotmail.com and ask any further questions

Unknown said...

Thank you for your effort to raise awareness in pervasive developmental disorder. I am diagnosed with Asperger's Syndrome in my adulthood, and I see many inadequate, if any, social and community support that is made available for us.

Asperger's is subsumed under Autism Spectrum in DSM5 (came into effect in Sep 2013), yet very little effort has been made to address issues of what happens to the previously diagnosed patients; or how would this impact other areas of concerns such as insurance premium and coverage.

I have above average intelligence, but I don't function as beautifully in social setting, and relationships with people have always been difficult.

There is no cure for AS and ASD, ironically, little help is given to us who grow into adulthood. My diagnosis is made in IMH and I find comments of the psychiatrist discriminated and undermining. Very little empathy is extended because I seem to lead a 'successful' lifestyle - by which, it meant 6 years working from home with once in every many months outings.

I am pursuing the Bachelor degree in Psychology and hope to advocate for public awareness for childhood disorders.

There is no 'better' or 'worse' to 'label' ourselves with a diagnosis. Until people live a life like ours, they don't get to say 'what's the point' of the diagnosis. It's the closest to some form of closure that I would ever get, but I understand that most neurotypical may not see it that way; hence the public awareness.

Samuel Tee said...

Hi Li Sun! I appreciate your testimony about being diagnosed with Asperger's Syndrome. It is certainly a condition that makes socializing difficult, something that I do experience myself.

I have attended a social outing for people with asperger's syndrome in singapore before. It isn't a big group, and from my observation, people with asperger's syndrome are individually unique, though they suffer from some form of social deficit in one way or another.

From having observed people with such conditions, I would have to say that Asperger's syndrome exists. I don't think I agree with the amendment to the DSM of Asperger's being simply an autistic spectrum.

Anonymous said...

Does aspies normally speak very loudly?

Anonymous said...

I have a very bright son (according to proncipal) but did not get into GEP. He is in P5 now and principal is suggesting we put him in pathlight. Do you think it is a good idea?

His form teacher could not tolerate him being so rude. She has always tried getting him out of class and engaged in a power struggle and this boy no matter how much counselling and canning still does not learn his lesson though always promise to cooperate. Any suggestion on how we could handle better?

Anonymous said...

Hi Samuel,

Thank you for sharing about your condition and its a relief to read your blog.

My son, Travis is now 8 yrs old. And it did not occur to me or my family that he being the quiet boy, attention seeking and mellowed attitude since Kindergarten has this condition. However he does show mild and occasional signs of OCD. He pays a lot of attention to his handwritting and gets upset when he could not write nicely and he loves mathematics and reciting the train station names in both running orders. Oh and he is so good in strategy games like Clash of Clan and Angry Birds and he enjoyes winning.

He is very poor in chinese, he practically hates it. However he enjoys writing all the chinese character beautifully.

Last month, i engaged a chinese tutor (a school teacher) to coach him as group tution does not worked out well for he is slow in picking up new vocabs and does no respond to the tutor well. He does not like to be labelled as slow or rude by anyone including me.

The tutor commented that Travis could be suffering from Autism or Dylexsia and he may need an assessment done and requires special intervention.

I spoke to his form teacher in school asking for her opinion. She says she did suspect something amiss and she will get the school's education officer to assess him first and true enough the officer says that he may have a mild AS condition. I was devastated as i read up about it and i founs it rather hard to accept that Travis being the quiet and obedient one is not normal. I had to stop his tution and coach him myself so he does not get morally affected by inpatient or rude tutors who are not trained in this field and does not understand his condition.

I am bringing him to the polyclinic to get a referral and then to KKH for a full diagnosis and arrange for proper therapies to help him overcome this lifelong condition.

I have yet told him about his special condition for fear that he could feel inferior to his siblings and peers in school. I do not cane nor reprimand him often as it does not help him at all. I have now adopted a soft approach by listening to him and explaining to him based on situations instead and he is open to this approach. Thank god!

However do you think i should tell him about his condition? How do i put it to him?



Anonymous said...

I'm in high school, and know two other aspies besides myself. One talks really loudly, and the other talks not as loud, but kinda loud, and I talk pretty softly.

Anonymous said...

Hi all, i just came across this blog. sorry for joining so late in the game but figured if i found this on the net, others might too. Samuel, thank you for sharing your story. I wonder if it is compulsory to disclose the diagnosis at all, for school, insurance, work and other applications.
As we all know, the spectrum is super wide. My son was diagnosed with AS at age 10, 8 years ago. At that time, very few people knew anything about it, me included. So i had to take to books and the internet to understand it and help him. And eventually seek help at CGC. My son and I walked the journey together every step of the way. So no holding back whatsoever. Even with the diagnosis, there were challenges at every stage. In helping him understand and manage himself so that (thankfully) he did not need meds other than the initial year, educating and working with others in schools, prevention of bullying, etc. Just keeping him in mainstream sch was a challenge. Apart from 1 VP in pri sch who suggested he moved to a special sch, other VPs, pricipals and teachers were more than willing to help. And with this support he excelled in school topping cohort after cohort and having good friends who were supportive and patient with him, and who enjoyed his loyal, matured and non judgemental friendship.
Our challenge now is to help him fulfill his dream of becoming a doctor. Lord knows he has worked hard all his life at everything that comes naturally to others.
NS now has a blanket policy to exempt those on the autism spectrum regardless of capabilities. We're about to start the appeal process to get him in. Why you ask? Because we're finding out how discriminatory it is in Singapore. Plus he really wants to serve.
Makes me almost wish he never got diagnosed. So starts a new battle for this single, working mother/advocate and a very special boy. If anyone has any suggestions or advice, it is most welcomed. God bless all of you.

Samuel Tee said...

Nice to hear your story, and to read that your son is doing well in life. I hope he fulfills his dream to become a doctor. For NS, it is possible to serve in admin rather than in combat if you have Asperger's Syndrome. It's less socially stressful, and a great way to serve the country with pride for NS as someone with Asperger's Syndrome.

Drey said...

Hi Samuel,

I was wondering where I could go to seek a ASD/Aspergers specialist to get a formal assessment and diagnosis?

I have been in and out of psychiatric treatment for the last 20 years (mostly for prescriptions) to treat my OCD, anxiety disorder and depression. I strongly believe that I have been under-diagnosed because the above conditions could be present as symptoms of having Aspergers.

I have read alot of articles and studies on Aspergers and when I read it I somehow felt so relieved because I always used to think I was crazy and the only one in the world suffering inside and keeping it all in trying to fit in with society.

I had asked my psychiatrist at TTSH if he could refer me to a specialist but he was reluctant and kept saying he didnt feel I was Aspie and I was just reading too much into online info, which I felt was very dismissive and insincere of him especially when I know day-in-day-out all my 32 yrs of living what I have gone through and him simply asking me shallow questions is not enough to assess me, so he refused to refer me and even gave a lame excuse that because of my anxious/agitated mental state that day, he claimed it would not be suitable to refer for an appointment with the specialist because my current mental state would interfere with the assessment.

That's where I felt he was really stupid and giving me BS. I may be "unstable" today but hiw is today going to affect my next appointment in the future? And does he know whether or not on that appointment I will be stable enough to do so? For a doctor, I sure feel like I was talking to a buffoon with a doctorate in name.


So upset and fed up with Singapore's lousy psychiatric standards.

Anonymous said...

Hi Samuel, thanks so much for sharing. May I know if you have struggled with short attention span problem when you were younger? I have a 3 year old son now whom I suspect to be suffering from AS, and one of the red flags is the short attention span problem...

Faith Celebration Center said...

It is proper to respect one's elders. If an elderly person causes another to experience shame, however, then it is best to avoid the elderly person. Even if the elderly person is in the wrong, public opinion will come down against a person who responds to the shame with disrespect for the elderly.

Unknown said...

Hi Samuel,

Thank you for sharing your story. My son just recently diagnose with asperger syndrome, it was a shocking news for us since we have not notice any sympthons until he's entering high school. after receiving the news, we started reading alot about this syndrome, and we agreed with you. this syndrome is not common, therefore not many people know how to treat, especially in Jakarta where we lived. i'm looking for some sort of support group, and if you have some reference that you can provide. the idea is to show my son, there are people like him, and able to embrace his uniqueness and adapt to the world.

thanks so much.

Adelina

Eric said...

Hi Samuel and all autistics readers, I am Eric of iautistic.com. I welcome all of you to contact me if you wish to be part of the autistic community network in Singapore.

Search This Blog